My post got rambling and long last night so I'm sharing some more thoughts while my mom sleeps. who said she does not have 'traditional GP', and that her whatever has been caused by surgery, pain meds, and/or the cancer. Advised me to stop taking my pain meds totally! I have a far longer post about this that has several other angles of the discussion. I think he said if this didn't work we would do the balloon and botox next time so hopefully that will help. Or anyone with a gastric pacemaker and MALS? I've had 4 Nissan surgeries for GERD (3 revisions-the original was done at age 25they told me it was the reason for the many bouts of bronchitis, which then turned to asthma from the aspiration while sleeping). nausea. Abdominal Pain in Patients with Gastroparesis: Associations with Obviously she's miserable and because of the repeated hospitalizations, she's only been able to have 3 chemo sessions. UGH However it is too long and no one has replied to it. Aims: 1) Describe characteristics of abdominal pain in Gp; 2) Describe Gp patients reporting abdominal pain. It was done at Wake Forest Baptist Hospital. Abdominal pain can be an important symptom in some patients with gastroparesis (Gp). Thanks to anyone answering, and blessings to all of you in your own struggles,you inspire me just reading your courageous stories :) Where the heck that came from, I have no idea. I'm sorry you're having such a bad time with your doctor. So I guess I am the lucky one. If I were you, I would explore in more detail the diarrhea as you may have some other issues. On a side note, I'm been suffering for a LONG time but for over a year now this "new" GI doc has told me that all my troubles are caused from IBS. Gastroparesis is a long-lasting (chronic) condition in which food passes through the stomach and into your gut (intestine) more slowly than usual. The people at the desk are always so sweet. Overview What is the Vagus Nerve? Median arcuate ligament syndrome (MALS) - Symptoms and causes i don't know. between the ribs, below the breast bone. Sorry this was such a long post but it's just little history. The Mayo clinic? I would really appreciate any advice anyone can give me and if you can give me names of a Dr to turn to. I sometimes feel bloated after meals but it always goes away after passing gas, and it's never a life altering pain. I've become more depressed because of them (yes, I do take an antidepressant), a serious "homebody", I find that I cannot make plans with friends in advance and am almost always having to cancel plans, date nights with my husband, church with my family and family outings My surgeon told me anyone with a blockage would automatically fail the gastric emptying test. I have been given glucagon in hopes of stopping the spasm but have not have a lot of luck. But I have just had such a bad week with feeling so bad and my emotions being all over the place it would've been really easy to do. The ginger candy came in and it worked pretty well between the times that I could take the phenergan and zofran. (I tend to think it could have also been the same blockage and I was just released too early) I was immediately placed on another NG tube and went days of X-rays including the gastric emptying test (radioactive eggs). Lovely. I was diagnosed with Pelvic Inflammatory Disease after a bad UTI and another bad infection. Methods: Initial management of gastroparesis consists of dietary modification, optimization of glycemic control and hydration, and in patients with continued symptoms, pharmacologic therapy with prokinetic and antiemetics. I had been using a prescription cream for my right hand because it was broken out in this rash I get when I get stressed, but it seemed to clear up so I stopped using it. I can not go #2 on my own so every 4-5 days I have to purge (I take dulcolax) to go #2. Then she said she does not know what to do at this point. However usually the pain is intense and comes out of nowhere! Managed to sprain both wrists and hands which was fun for a few days. I know what my primary would say, if you're hurting, take the meds, don't suffer. Even drinking was painful. I had a pacemaker for my stomach placed about 2 weeks ago to help work with my GPOEM that was done in April 2020. I feel a lot better now. I love how my mind and body feel when I am drug-free, but I can't manage the pain without drug intervention. bloating, belching, heartburn, and acid reflux. . The one I paid all those copays and deductibles to trying to get help? Upper abdominal pain was originally . The location of the median arcuate ligament and celiac artery varies slightly from person to person. I have never been caught so off guard as when he said that he thought I have Munchhausen. On my 4 hr emptying test, I emptied 75% of my meal in exactly 1 hr then all of the rest of it by 2 hr's. (Because I feel I haven't been given much of this at all and it makes me sad) I purchased a box of 10mg domperidone from the chemists which gave huge relief! I break into a full on sweat from the pain, it's like my body cannot get rid of the stool quick enough. It's almost like the food is backed up to there and won't go down so it's causing pain there. In fact I have decided that for the next couple of weeks I am not even going to eat, I really don't care how much weight I lose as long as I stay hydrated and get some nutrition from what I take in. Anyways November 2020 I had a duplex ultrasound that showed findings of MALS and even had a positive Celiac Plexus Block in April of 2021 despite my Ctscan showing no findings (though I want it redone due to it being done incorrectly, they only had me breathe in) bjt my doctors are still chalking it up to pain from my gastroparesis. I mean, come on, who wants to live their life like this? That was going to be my last appt. I also ordered these hard ginger candies off amazon and picked one day shipping so they would get there Friday because I hate being nauseated so bad. Friends and family do not believe in Hydrotherapy and yell at us to, "Get the Hell out of the shower/tub!" Keep us updated on how you are doing. I told her I'd been using a prescription cream but right when I stopped it came back and she put some cream she had on it and suggested I either use that or Aveeno, so I bought some Aveeno, one big can for by my bed and one little bottle to put in my purse over the weekend. She continued to have stomach pain and got diagnosed after that with gastroparesis. Gastroparesis - Symptoms, diagnosis and treatment | BMJ Best Practice I also went to UNC's mobility clinic before the gastroparesis got to where they had done all they could for it and they sent me to Wake Forest to the doctor that people come from all over to see. Managed to NOT throw up, which isn't really easy but my throat is sore from "burping up". vomiting. When you are in pain and a doctor does what he did to me, well, let's just say you can't help yourself. I'm also not messing around with no name doctors. I don't know what to expect. They had said I might feel nauseated from the anesthesia, though, and I didn't take my zofran (I'm supposed to take the 8 mg dissolving pills twice a day) after the procedure because they had mentioned possibly giving it to me during the procedure and I wasn't sure if they did so I didn't want to take too much, so I wasn't too worried. For those who reply to this in the affirmative as far as using Hydrotherapydo you suffer from the hurtful discrimination that I just described as well? I keep praying to God for some sort of help guidance or miracle. My surgeon explained that I also have a severely spastic bowel, beyond any he had seen before. I feel helpless and all my Doctor keeps doing is giving me more meds or doubling my prescription. In Sept. 2009 I began getting sick again. 100 Years of Cleveland Clinic. Diet has had no effect. I'll add you as a friend and try it that way. So to speak . What painkillers do you take for Gastroparesis and SIBO-related pain? The only reason I have tried to stay with him is because he is at the University Hospital in Atlanta GA where ALL of my other doctors are. Are you sure you want to block this member? So excited about that. He actually said he thought that the reason for the granulation tissue and necrotic tissue was that he theorized that I was jerking and yanking my j-tube all over, and then changing my dressing with (purposely) dirty hands to try to get my tube sites infected!! Gastroparesis is a condition that causes delay in the emptying of food from the stomach. Chronic opioids in gastroparesis: Relationship with gastrointestinal I've tried Botox (that's how the last Nissan surgery endeda shot instead of a hole in my esophagus) and it lasted 2 blissful months. I shake all the time. Their GI's there are all wonderful. I also started having some pain so I had to take a tramadol. I try to take breaths and relax. . Skip to content Care at Mayo Clinic Care at Mayo Clinic About Mayo Clinic Request Appointment Thanks again for the help . I also for as long as I remember had random fainting/dizzy moments when stood still for 10 mins or more, they ALWAYS end in vomitting, which the docs said was a sudden drop in blood pressure. Sorry to endlessly vent, I just am sickened by this whole situation anyone have any advice? Yep, just black out for the heck of it. Then he commented on the fact that they left my colon in, and he didn't understand why seeing how I had Clonic Inertia! WHAT?!?!? I take Domperidone, Zofran and hyoscyamine for my gastroparesis and since I dont get hungry on my own I also take Merinol. Dietary modifications include: Switching to a liquid diet, as liquids may empty more easily from the stomach The attacks render me useless, as I am so weak and just want to sleep all of the time just to get some energy back. hypothyroidism). Well they did exploratory surgery, but my surgeon said my bowel didn't appear to be twisted but I think he did remove a small portion of my colon. There was no need for her to be nasty. Her stomach still cramps with the nj but its tolerable. About 4 weeks ago, the surgeon went and removed and cleaned up the granulation tissue from around both the j-tube and g-tube. My symptoms include acid reflux or continual belching - (which smell foul, very much like sulpher) and painful stomach cramps. It hurts to breathe, I don't want anything to drink but Sprite and can hardly drink even that. I have had more IVs than I could possibly count and all of the veins in my arms are shot. I felt good for a while after I got home, but then started feeling sick again. Well I opted for the surgery to open my stomach valve into the intestines in hope that it would help he also removed my appendix because of my history to prevent from having to do any additional surgery in the future, but it didn't work. Gastroparesis is a gastric motility disorder characterized by upper gastrointestinal symptoms, including nausea, vomiting, early satiation, postprandial satiety, bloating, belching, and epigastric pain. But all I end up being able to do is lay in bed, in fear. Summary. My pain is just below my breast bone too. I started having horrible pain just under my sternum by my ribs. This can lead to stomach problems and pain. Then 3 days later, I was feeling so sick fever of 102, my husband took me to the ER and found out that I had pneumonia! John Hopkins Center for motility? Sharp, jabbing pain . My surgeon says my pain is where the wires go across to my stomach. Have no appetite). I can't wait to find out the results from the thoracic, as I have a pretty visible lordosis curvature and most likely more compression fractures. Eventually (usually 12 hours or so later) I vomit undigested food, the retching is particularly forceful and painful. In this group, I told the lady posting that her primary physician was wrong, that I go to a motility specialist that people come from all over to go to, and that he says there is pain with it, and that he would know more about gastroparesis since he is a specialist. So, that's it- his advice: eat 6 small lowfat meals a day, take hyoscyamine three times daily and zofran, as needed. Will my doctor listen to me? I'm a happy person but depression is creeping up on me. International Foundation for Gastrointestinal Disorders (IFFGD) raises awareness for Gastroparesis Awareness Month to shed light on the varied impact on the quality of life for individuals.. MOUNT PLEASANT, S.C., July 13, 2023 /PRNewswire/ -- Gastroparesis Awareness Month, established by IFFGD in 2016, takes place every year during August. When I eat anything, it feels like I ate a rock and I have pain under my ribs where my stomach is, not to mention nausea all the time! So cold all the time! It was an okay visit nothing great and I did not leave with the feeling that he was the one to help. On March 31st, the only surgeon who performs this surgery in the state of Nebraska put in the Medtronic pacer and also did a Nissen fundoplication (since a pH test showed I had horrible GERD) as well as a pyloroplasty. I had a lumbar peritoneal shunt a while back (which was removed) and later we found out that a small piece of the catheter was left in my left side. I really dread eating. Gastroparesis Treatment | Johns Hopkins Medicine The pain usually leaves me doubled over and miserable. Taking lorazepam isn't helping me any. My pain is at the lower tip called the xiphoid process. . The pain that comes along with taking laxatives combined with the pain Gastroparesis causes me is taking a toll in my everyday life. I can not tolerate j-tube feeds so I am strictly on TPN. I have also lost 175 pounds total in the last 3 years, the majority of it in the last year. Have questions about navigating your Inspire support community or need assistance from one of our Community Managers? Have you been tested for pancreatitis? I'm hoping that it was just because I ate on Thursday instead of sticking to my nutritional drinks and my body was just rebelling against that and starting having pain again. That means no more pay check. However the past couple months it has been becoming frequent, painful and debilitating despite good sugar level control. Has been vomiting, bloating very badly, abdominal pain, sometimes doesn't wanna ear (but most of the time she gets all her calories) she sweats a lot and a few other little things.. plural gastropareses -sz. My Dr has sent me to the hospital for Morphine and Phenergan several times but then they send me home so the relief is short lived. Need doctor recs and other advice for SIL with GP from cancer surgery. I'm not sure when I'm going to crash, but when I do I'm going to crash hard; I'm pretty sure of that. Gastroparesis - Symptoms, Causes, Treatments - Healthgrades What causes gastroparesis? have no choice but to go to the ER). Anyway, after being home from the surgery I was feeling great. I haven't worked since Dec. and have exhausted all leave. I use Hydrotherapy in the form of showers to treat the nausea and pain from my GP and to curb instances of Cyclical Vomiting Syndrome, (which if unchecked/untreated with Hydrotherapy causes an endless cycle of vomiting to the point that I get Mallory-Weiss Tears and vomit blood and have to get literally Liters of blood drained from my stomach. The reviews seem mixed on it. He didn't know why, or where it had come from, but the same tissues (granulation/necrotic) came back very quickly. gastroparesis Partial paralysis of gastric smooth muscle, resulting in retention of food. I told my surgeon that I can't be the only one with problems around a j-tube site. and he said "no, I am sure you aren't", but yet he still accuses me of sabotaging my tubes to make sure they have complications. If she tries to eat more she will regurgitate a lot and her stomach will hurt her tremendously because it will feel so full. All seemed well until February. MALS symptoms may be vague and can mimic other conditions. poor appetite. Anywho I was wondering if anyone else had any insight? I've tried Bentyl with no results and even ground fennel that a lot of people swear by, but none of it helped. Pretty simple and to the point, correct? Amy D. So much has happened lately with my health and it has caused me to have severe chronic anxiety, which makes me smoke more and more each day. I think I may have sleep apnea due to the GERD I am dealing with. Starting around 2003 to 04 I started going through some really tough days at work with unbearable stomach pains weakness and nausua. I'm back on just liquids and nutritional drinks today so I hope my body will adjust and get back to normal again. Gastroparesis | definition of gastroparesis by Medical dictionary I Need a Hug! Gastroparesis - Symptoms, Causes, Treatment | NORD So I'll give them a call when I finish this and see if I'm correct. We tried medication and dietary adjustment which only seemed to work for a few days. I feel so alone and without anyone to turn to. This new pain guy I see all the time at the hospital where I work, he is decent to ordinary staff (a testament to his character) and spent almost 30 minutes with me in his office- I was floored. We dont know what to do and we feel like she is just getting worse. Gastroparesis - Symptoms and causes - Mayo Clinic What is the name of the GI you are seeing. Sometimes, treating the cause may stop gastroparesis. While the exact cause of gastroparesis isn't known,. The doctors look at my stomach and are horrified. Thank you both for the replies. I assume that is where you are going. I'm mainly just wanting to see if there are people with GP that have no symptoms? Thanks for the prayers and so sorry to hear about your hand! I had to eat 100gms of fat per day for 3 days and had to collect my stools. I still stick mostly to liquids in the evening, but at least I can eat some real food early in the day. I was released from the hospital and went home for a day and a half before I had to go back to the ER for extreme abdominal pain where I was told I had another blockage. She has had some blood work done, upper GI, endoscopy, flex sigmoidoscopy, sweat test, and stool sample test done.. and they only thing they have been able to find is that she lost a little bit of protein in her stool but doesn't think it was accurate and then she is lactose intolerant. I have idiopathic gastroparesis. Doc says Munchhausen Syndrome is the problem! Anyone with MALS and a gastric pacemaker? upper abdominal pain. We got into that on our cushings website . Then all of a sudden I was having to deal with being constipated; living off of stool softeners and laxatives to enable me to have a bowel movement. Now I just have to convience my family doctor to refill those for me. Now, it all made sense. I do have other "issues" with diarrhea (most of the time) and then short bouts of constipation. I've had 5 surgeries in 4 years. I do take supplements so my weight hasnt started to be an issue just yet. Relief of acute pain in chronic idiopathic gastroparesis with - PubMed I like my doctor in Marietta, Ga. That wasn't always the case. Hello all. Every time I bring it up im asked why I keep bringing it up bc the ctscan was negative. Gastroparesis is a condition in which food stays in your stomach for longer than it should. I Manage to eat once a day because that is all I can tolerate. EPIDEMIOLOGY]. Maybe I do need to relearn. I am 34 years old and have been struggling with stomach and GI issues for several issues. (32yrs) I have severe gastroparesis (0% emptying) and little peristalsis in my small intestines. I also had an EUS (endoscopic ultrasound) to diagnose the pancreatitis. Will I ever get control over this? my husband asked him if that is what he would do if it were his wife. Does anyone know what causes the unbearable pain that we go through with Gastroparesis? it's a long story but I'll try to shorten it up . I wanted to wait to talk to him about it until after I saw this new pain management specialist because I knew he wouldn't want to do anything before then. Gastroparesis: Pathophysiology of Chronic Abdominal Pain and Current I also struggle desperately with dehydration and often times, I can't get caught back up (rehydrating) which leads to a trip to the ER. I then had a 72 hour fecal fat test. I have lost over 30 lbs through the process. Even though I have a new diagnosis of no GP, I am still having pain, usually it's just below my sternum. I tend to go #2 every single day, if not multiple times a day. I have NO ONE to be here for him if I end up having to have some kind of surgery. The pain is so intense it brings me to my knees. They thought that was the problem, redid the Nissan, and called it a day. I appreciate any input anyone has, thank you so much!!!! I want to addI am glad you went off on that dr. when that happened. Falling, extremely weak, I was to the point where I had to use a cane. I feel so alone! My gallbladder was taken out due to gallstones and horrible pain. I have just gotten over a bout as I had only been able to consume liquid glucose and flat lucozade for 4 days straight. It took longer to work and didn't get rid of the pain completely, but it did take the edge off a little. Abdominal pain is an often under-appreciated symptom in gastro paresis. . I literally lose the majority of my strength and feel exhausted, helpless, concerned, worried and at times, terribly upset which leads to feelings of hopelessness. you are right about what you said in regards tthat just because the place you go to is suppose to be one of the best doesn;t mean all of the drs. . As sick (and gross) as this is, I have to use rubber gloves and Vaseline in order to put one finger inside my bottom as a 'hook' to pull out the hardened stool that I sometimes CANNOT pass without doing this. They perceive it as having no real health benefits and that it is purely "psychological". It's almost like the food is backed up to there and won't go down so it's causing pain there. It was bad enough the numerous time docs have run out of things to do, or have given up hope of ever diagnosing something, so they decided that I must have Somataform disorder, and they sent me to this psychiatrist or that psychiatrist to have me evaluated. am really new to all of this! He did not perform any new transit tests, just looked at her records from the gastro. All I know is I am still in daily pain, have gastroparesis, pelvic floor disorder, motility disorder and a bladder prolapse. I was able to eat dinner (Cream of Rice and a couple of pretzels) and feel fine afterward. I'm currenty taking Glycopyrrolate and it work ok depending on how bad I'm hurting. Well, the GI doc when I first started seeing him was the one who made the call to TAKE IT OUT!!! I can eat a lot more foods than I can can when I'm bad off. upper abdominal pain nausea vomiting loss of appetite bloating feeling full malnutrition unintended weight loss What causes gastroparesis? I had a really bad spell around Thanksgiving & he came thru for me. I would be so grateful for any suggestions. Finally the last test was a gastric emptying study. I tell them that when I am in such intense pain I don't care if I am burning my skin because I need the heat to penetrate deep into my abdomen where the pain is. ARGH!! It is almost a paste, sort of thick and is hard to get up, it almost feels like its coming from deeper than my stomach. I would feel full all of the time, I couldn't eat, but I was also gaining weight. We are just trying to get through life. I am confident that this is where the depression comes in, along with the pity party (I like to host, on occasion), the crying jags and just being upset in general from missing out on some of my kids activities and really, my life! We also want to discuss medicines because she is not on any. . Aims: (1) To describe characteristics of abdominal pain in Gp; (2) describe Gp patients reporting abdominal pain. My old GI used to yell at me because I would be taking pain pills to alleviate the pain from my arthritis.